Myotonic Dystrophy Information

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Research
Research
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  Link   The Harvard Neuromuscular Disease Project
The Harvard Neuromuscular Disease Project focuses collaborative research projects on the following muscular dystrophies: limb-girdle, Duchenne/Becker, facioscapulohumeral, myotonic, Miyoshi, myotubular and centronuclear. The site also features opport
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  Link   National Registry of Myotonic Dystrophy and FSHD
The National Registry is a “match-making” service, of sorts. We collect information from people with Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy (and their unaffected family members who elect to join), and match them up with scienti
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  Link   National Institute of Health (NIH) Clinical Research Studies
A collection of research studies being conducted at the NIH Clinical Center. Searches can be conducted by diagnosis, institute of primary investigator or other key words or phrases.
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  Link   European Neuromuscular Centre
European Neuromuscular Centre (ENMC) is a partner in the development of collaborative research activities. It ensures financial support for ensuing workshops, offers organizational support through its secretariat in Baarn, The Netherlands, and acts a
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  Link   Baylor College of Medicine (Neuromuscular)
This site includes information on Baylor College of Medicine departmental clinics, faculty, training programs, research on neuromuscular diseases, neurology news, a comprehensive index, and the MDA/ALS Research and Clinical Center at http://www.bcm.t
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